Jessica Stein

Jessica Stein

@tuulavintage

Wanderer in a past life 🍃 Mum to the strongest human. Learning to advocate for extremely rare chromosome disorders. Email jessicamaystein@gmail.com 🌻
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


As most of you know we have spent majority of our year at @sydney_kids hospital for our beautiful daughter Rumi. We have experienced overwhelming support and offers during the past week from so many people worldwide who want to give to the hospital. We have decided to postpone our original intimate afternoon get together until after Christmas and New Years, for a bigger and better night to accomodate more people at the spectacular @thegrounds. Our eternal thanks to everyone who has helped so much already, and looking forward to sharing updated event details for the New Year ❤️

7 Hours ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Ru with her Roo 💕🐨

1 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


To the moon and back. 🌕

4 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Enjoying every moment we have at home with our happy little sunshine 🌻 After spending every occasion in hospital this past year we feel extremely lucky that we will most likely be celebrating Ru's first Christmas at home, all together. This isn't the case for so many other families of unwell bubs and kids. We will be back in @sydney_kids for treatment next week and thought I'd reach out and see if anyone, far or wide, person or business would like to contribute towards spreading some joy to the families in need of it. If you have any gifts for children of all ages receiving treatment, or maybe a dinner voucher for the parents who haven't been home in weeks, or to help @rmhrandwick make these families stay easier especially at this time of year, please email me at jessicamaystein @gmail.com. Even the smallest gift or gesture can brighten someone's day. 🤗✨

7 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


For the last few months I have been using @superelixir to help get myself feeling healthy and happyontheinside again while living between hospital and home. You can read my interview with WelleCo on their journal through the link in my bio 🌱 "It can be difficult to allocate time to yourself as a parent of an additional needs baby but I find the most simple things can often help the most - buying groceries at the local Farmers Market each weekend, going for a walk together even if only around the block, having someone watch our daughter while we take a midday nap, and dive in the ocean any chance you get." 🌞🌻

9 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


We've been hanging out for days like these... 🌞💕🌈

11 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


I'm still waiting for my thicker skin to grow in, for it to bounce off when people question my "choice" to NG feed my daughter. Some babies are breast fed, some are bottle fed. Some babies are NG, G or TPN fed. If it is any of the latter I guarantee that those parents fight harder than imaginable for their children without the luxury of most choices. The way my daughter feeds doesn't mean we have any less of a natural bond. Overcoming the obstacles we have endured together only makes our bond stronger. 🌻

14 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


"Give it all to the sky and rest your mind." ☁️ Happy to be wearing bare feet and beautiful @fillyboo

16 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Making the most of getting to know Ru's whole face tubie free for the first time in months (if only for a few hours) ❤️

22 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


The waves will keep coming but we're learning how to ride them. ❤️

24 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Happiest at home 🌿 Spending the afternoon together in sunshine and linens by @cultiver_goods 💕

29 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Children's Hospitals might not be anyone's favourite place to live or grow up in, but they can be one of the most inspiring and humbling places on earth. Thank you to every single person at @sydney_kids for continuously helping our daughter these past several months, whether it be Doctors, Surgeons, Nurses, Cleaners or other parents we meet in the kitchen. The artwork that lines the halls, fresh air in the Fairy Garden and familiar smiles from staff help keep us sane week after week. Thank you to @rmhrandwick for keeping my family, and so many others together during tough times. We're still struggling to come to terms with the outreach and support that has hit us like a tidal wave the past few weeks. We are currently brainstorming, and bursting to see what we can truly make of this unprecedented generosity to make a difference for more. If there is anyone out there with resources or skills to contribute, please, please reach out. You might have something laying around, an idea or literal, that could help other families like ours dearly. For now, we're heading back home ❤️💪

50 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Thank you. It has been a mere 24 hours since we shared Ru's journey. We are in complete shock. How amazing that a community can come together to change lives. We promise to do our very best to pay this overwhelming generosity forward. The heavy knot that has been in the pit of my stomach for months on end is now lodged in my throat; I am lost for words that will ever carry the weight of what this means to us. Thank you. Thank you. Thank you.

58 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


What would you do if your daughter was born with one of the rarest voices of all, and you had an international audience that could be open to listening? There are a whole world of people out there who live in similar, and much worse situations to ours without anyone to hear them. I have always been extremely private and had planned to keep my pregnancy and children offline, until they could make the choice themselves. But sometimes you make plans and life happens. We have struggled to decide if we should keep Ru and all her strengths and her battles to ourselves, or to share. To find anyone to relate. Maybe if we could help educate even just one person there would be more understanding... I started my blog as an outlet of personal distraction, hope and simply starting my life over after being hit by a car. Maybe all of this travelling and experiences with life were just building me up for something so much more. Maybe it's not my voice that's meant to be heard, but hers... Pat and I have started a @gofundme page to try and help us help our Ru. We have been trying our best to avoid asking for help throughout this tough twelve months, but there comes a point where we are running out of options. If you would like to contribute, or share we would be thankful beyond measure. Or if you'd just like to learn a tiny insight to our Ru and her incredible accomplishments and complexities please read here http://.com/our-little-warrior or through the link in my bio. 🌻 xx

59 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


From early last week, making the most of a happy morning together before Ru's surgery. Wearing @spell_byronbay dress, part of their new collection launching tomorrow ✨

65 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


"Out of suffering have emerged the strongest souls; the most massive characters are seared with scars." - Khahil Gibran Our little phenomenon, at home on better days. 🌻 Thank you for every single well wish, prayer and good vibes sent our way over the last few days, it has been overwhelming and dearly felt. We have been inundated with messages of support, advice and similar journeys from around the world. Some even made tangible offers that completely shocked us, like a local offering their spare room to crash in while we're living in hospital, and a $100 food voucher from friends we haven't seen in several years. These small gestures are ultimately huge, and are absolutely invaluable to us right now when all of our energy is best spent on Ru. Pat and I cannot thank you enough.

66 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Every day is a fight, but yesterday was the worst of our lives. Ru had urgent surgery for her intestinal malrotarion a few days ago. After a horrible day when the morphine increased and she was finally resting during her first Immunoglobulin Replacement Therapy (plasma transfusions) her stats dropped. No parent should know this feeling. I don't know how we made it through. But she did. Today the fight starts over again. There are so many parts of life that we won't ever be able to understand unless we experience them ourselves, but we can try. I never knew the amount of love, hope, isolation, pain and suffering possible until caring and fighting for a chronically ill bub every day. To anyone out there that knows someone going through a tough time but doesn't know what to do or say so thinks it is best to stay away until tough times pass, please don't. If you ask "what can I do" and they don't give clear direction, do what you can anyway. Leave groceries on their doorstep. Freeze meals. Bring coffee. Turn up for a hug then leave. Watch their kids while they take a shower or a nap. Please don't stop texting even if they don't reply, they probably don't have words to explain it. Ask if they need help paying rent, bills or with Centrelink forms as you know they haven't been able to work in a year. Ask if they need help getting to hospital or ED each day. Ask them if they want to talk, or sit together in silence. Don't tell them everything will be okay if they "just think positive sunshine and rainbows". Please don't assume we are on the same journey as other new parents. Please don't ask "what's wrong with her" just to know, and do nothing. Please don't assume anyone has enough support around them as this is not always the case, and can be a difficult thing to admit. I have been begging for help and understanding from Doctors, family and friends this past year and try to focus on those who have remained and not feel the hurt of who is not here. At the end of all the shit days these things go out the window. Because it's not about me and Pat, it's our beautiful girl that doesn't deserve any of this.

69 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Find what gets you through; the ocean, bare feet and remembering to look at the sky. Wind in my hair and favourite dress by @fillyboo ☁️✨

70 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Going to miss rare nights like these... ✨🥑🍷🌱

72 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Making the most of being outside, together 💘☁️

73 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


💞

74 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


More than a delicate flower, she's a storm. ⚡️Wearing @spell_byronbay tuulaxspell

77 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Rumi 🌱

79 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Home. 🌱

80 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Dreaming away ☁️ Wearing dress by @spell_byronbay tuulaxspell 💫🌞

86 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


For some reason whenever I visit somewhere I've been once before, I remember every alleyway without a map. This was my Mum's first time in Italy, and Europe so we woke early to wander the streets before the crowds. She thought we were wandering aimlessly, but before long I'd weaved our way through the canals to this view of San Marco. I don't think I'll ever forget her face lighting up. So many simple, irreplaceable memories like these get me through some tough times and give me hope and excitement to see the same wonder in my daughters eyes when we show her the world one day. ✨

87 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


After living in hospital for the majority of the past 10 months I'm excited to be part of the happyontheinside movement with @superelixir and working with them to get my insides back to their healthy & happy self. This photo is from a year ago in Cinque Terre... I love thinking back to this morning, ecstatically six weeks pregnant and looking up at Manarola while floating on my back in the sea 🍊🌱🌞 What makes you happy? 🌻

87 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Positano dreaming... 🌿

91 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Those peachy days 🍑✨

92 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Riomaggiore's magic ✨🇮🇹⛵️🌞🍝

105 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Last summer in Firenze ✨🍝🌻🍋

106 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Introducing my parents to Italy this time last year ❤️🇮🇹🗺

108 Days ago
Jessica Stein (tuulavintage) Instagram Photos and Videos

Jessica Stein

@tuulavintage


Comment from Jessica Stein:


Bruschetta and beers overlooking Manarola 🍅🍺🌞🌻

114 Days ago